Showing posts with label Healing. Show all posts
Showing posts with label Healing. Show all posts

Thursday, August 1, 2013

Boho Bling Bracelets for Charity

 

I found out that an old friend of mine, Kevin, has cancer.  His mother-in-law set up an online fundraiser to help his family pay for his chemotherapy and help pay the bills while he is unable to work.  You can read about Kevin and donate to his fund by going here:  Good News! Kevin Made it!!!!

I was not able to donate as much as I would like to because I am disabled.  In order to be able to help more substantially, I designed a simple adjustable sliding knot bracelet to sell in my new shop, ThunderBlingJewelry - (Update for 2026. I am merging this shop onto DoodlepunkArt.Shop.)

There is a category called, “Boho Bling Bracelets” that I created for Kevin’s Cancer Fund bracelets.  The bracelets are $20 with FREE SHIPPING.  For each bracelet sold, I will donate $15 to Kevin.  The remaining $5 will pay for shipping, materials and etsy/paypal transaction fees. 

These bracelets look great alone or layered with other Boho Bling Bracelets.  They are a great gift idea for women, teens and even girls.  I can make them to fit any wrist. 

If I sell 33 bracelets I will be able to donate $500 to Kevin.  I’m hoping to at least raise that much for him.  Please help Kevin by going to https://www.etsy.com/shop/ThunderBlingJewelry?section_id=13977825 and picking out some Boho Bling Bracelets, or go to his fundraiser site at http://www.gofundme.com/3oota4 and donate directly to him.

I’ve known Kevin since I was a very little girl when he lived down the street from me.  We used to sit on the bus together and sing.  He taught me “The Crazy Old Man From China,” only he sang, “…China na nah…”  We also had matching brown tennis shoes at the time when only white shoes were “cool,” which was pretty awesome for me because he was cool in my opinion and I was a bit dorky…still am, I guess. Winking smile 

His brothers were really good to me when I was in high school.  One time I got a ride home from track practice from a really creepy guy who scared me nearly to death.  I never told them, but from then on, one of them always drove me home from practice. 

They are good people and treated me like a sister, so after hearing about Kevin’s illness, I naturally wanted to help.  Please help out.  By getting some of my bracelets, you get a great product and I am able to turn my time into money for Kevin’s fund. 

Kevin is a wonderful husband and father of two, and the financial burden of this setback is not an easy thing to manage when you are a breadwinner.  He had just missed a bunch of work because he had back surgery, and was still paying that off when his cancer was discovered.  Then he had to have surgery again, plus chemo. 

He has missed a lot of work and will miss a lot more and the bills are piling up.  His insurance pays for some of the treatments, but what it doesn’t is still an astronomical amount and the clinic insisted that he pay that money up front, so money is needed NOW to pay for the life saving treatments. 

Thank you for reading about Kevin.  If you can, please help by donating directly to his fund at Cancer Sucks or by buying some of my Boho Bling Bracelets.  Thanks. 


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Saturday, July 13, 2013

Rewrite Your Story - Healing for the Migraine Sufferer

I am sitting in bed with a cup of coffee, a gluten free sugar cookie and a book, just pondering.  I'm working on some new artwork, trying to figure out what direction to go. I am creating some mixed media artbooks, and decided that I want to actually tell a story. Why not MY story? What IS my story?



My migraine doctor reminded me last week about how far I've come since I first saw her five years ago. At the time I was severely disabled by my migraines and was struggling with depression, fear and hopelessness. I don't share a lot of the really hard stuff with a lot of people.  I don't want to be all "woa is me."  I do feel fortunate.  I am also a very ambitions (and proud) person and am not exactly proud of being disabled.  Being unable to work outside the home has been extremely emotionally difficult for me for a multitude of reasons.  I don't want to talk about the emotional struggles of pain disorders today, but I'd like to at some point.  Today, I just want to share what I was thinking as I was sitting here. 

I was pondering my story, and the stories that we believe about ourselves. What would be the moral of my story?  I guess it is to trust yourself, hang on to hope, believe what is healthy for you to believe, figure out what you need to do to make your life the way you want it and never give up and NEVER believe the negative, ugly things that people tell you about your lot in life. 

A doctor told me once that I just had to accept that I get migraines and there is nothing I can do about it. This was very hurtful to me. Yes. It is true that I do have to accept that I have a migraine disorder and it IS my lot in life, but there is so much that I CAN do about it.  I don't get to choose a different body or life, but I do get to choose what I do with it.  Despite my doctor's ambivalence and that of many other doctors I have had the misfortune of seeing, I clung desperately to the belief that I do have the power to change my life and my story and I did it, and am doing it. I educated myself, learning about migraines, learning my triggers and avoiding them, and have implemented behaviors to raise my trigger threshold via both medical methods (profalactic medications, pfo closure,...) and natural ones (exercise, nutrition, meditation, biofeedback, pt and ot, affirmations, cognitive behavioral therapy, retraining the brain...)  

It really pains me to think about all the fellow migrainers out there with doctors that are not helpful, especially the ones that prescribe medications willy nilly, ones that actually cause rebound headaches. Mine previous doctors did, quite willy nilly in fact. It also pains me to think about the lack of emotional support and all the misinformation out there. When you have a constant headache, wading through a bunch of riff raff to find something accurate and helpful is not an easy thing to do. 

When I was looking for emotional support, fellowship and information along the way, I joined some online groups, but for the most part I found a lot of people who saw themselves as powerless victims, hopeless, helpless, completely out of control, and many who used the forums as opportunities to complain and gain sympathy. When someone offered suggestions, there were often reasons why that wouldn't work and why it was pointless to even try, or the suggestions were completely ignored. I made the mistake of giving my contact information to a young girl who was an energy leach with a voracious appetite.  She was a headache giver as well as a getter. She had no interest in making her life better. She gained her fulfillment from the sympathy she received from others, so getting migraines was giving her something that she wanted.  She wanted the victim/martyr role. 

On another forum, I was attacked for posting information from my migraine doctor. I even attached links to pubmed documents with evidence supporting my doctor's claims, but instead of reading the links to check my facts, I was told by a faux doctor that I knew nothing because the hypothalamus is not a gland. 

I call him a faux doctor because any doctor should know that it actually is part of both the neurological system and the endocrine system, and even for the lay person a few seconds on google is all that is needed to find that information.  Here's webmd (Wow! that was so hard):


The hypothalamus is a gland in the brain that is the instigator of the migraine response, a painful neurovascular event, that is not well understood by most doctors, and not treated effectively without first understanding it.  We must learn about the hypothalamus and how to keep that gland "happy" so that we can feel better. The hypothalamus is the key to managing migraines, but it is a topic for another day.

A big part of my migraine healing process was managing my inner dialogue, and not just the constant chatter, the idealistic expectations of self-perfection and the cup-half-empty stuff.  I also had to ask myself, "What if I had no more migraines, what then? Would I lose something? Is there something I gain by having them? Is it actually something I want?  Is being able to use the excuse, 'I can't. I have a headache.' some thing that is worth the headache?"  No, it is not. 

Then I made as list of what I would have to do to control them.  It was a very long list and I keep adding things, but I've been accomplishing things on that list too and my headaches have gotten a lot better.  Sometimes we expect others (like doctors) to change our lives for us, but WE have more power to do that in most cases.  The pfo closure did make a huge difference for me.  I estimate about a 40-50% reduction in overall pain...I don't mean that I have no headache 50% of the time.  I mean that my pain intensity level is reduced by at least 40%.  This means that I can do more of the things that I need to do to raise my threshold and make my hypothalamus more happy.  One of those things is physical exercise. I was too sick to do it and now I can walk daily and get my body in shape, which is very important in preventing migraines. 

So I am working on my list; and I've tried more things.  I don't have the headaches under control, but I've made huge improvements.  I'm so glad I didn't believe that doctor who said I could do nothing about it, and the other doctor that said I was the most unlucky individual he's met.  What a horrible thing to say to someone, and I call BULLSHIT on them both.  BULLSHIT!  I am so so so blessed; blessed to have finally found doctors who help, blessed to find resources to teach me, blessed to have my art and many healthy outlets to deal with the emotional struggles, blessed to have a sharp, problem-solver's mind and blessed to find people who care about me and support my healing process, even though they aren't the people I had hoped would support me.  I learned to nurture those relationships that were healthy for me and let go of nurturing and trying to change those that weren't. 

Our mindsets, thought processes, beliefs, reactions, relationships,stories...are all things that can heal us or make us sick and these are all things that WE HAVE THE POWER TO CREATE OR CHANGE.  Don't ever give away your power over your life or cling to stories that make you miserable.  I'm still not sure what I'm going to do with my book, but I want it to be about the story of my life that is beautiful - the one about me clinging to hope, bravely fighting the battles and winning the war over illness. 

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Thursday, June 6, 2013

Be True To Yourself


Throw your heart over the fence and the rest will follow.  ~Norman Vincent Peale

In my life I have heard many times from both of my parents something similar to this, "That is very imaginative.  Too bad nobody would ever want to buy that."  or  "This is weird. Why can't you just paint a pretty flower or a mountain?"  

The more we stray from "the norm" the more we will hear things like this.  "Why can't you be like ____?"  The kids who are different in school get ridiculed.  We keep getting these messages to conform.  "Buy this so you can be happy."  "If you don't look like this, you are ugly."  

God made us each unique and special.  This is part of His plan for us and conforming to "the norm" is turning your back on yourself and God and denying your True Will.  If we strive to do and get better at what it is that is uniquely us, that comes to us naturally, that brings us joy, then eventually we will find our path and it will lead us on a great adventure.  

As artists, we must strive to find our own way, despite the "You must be crazy" looks and comments.  We must have faith in our vision and stick with the task of bringing it into reality.  We must be true to ourselves and embrace what it is that we love to do.  

Choosing a profession that we don't love can lead us to misery.  Choosing one that we love may be a rocky path, but it makes a great story and a meaningful life with a sense of purpose.  I do not know a lot of people who are truly passionate about what they do.  Despite my struggles, I would not trade lives.  

I have made a profession out of a vision.  My mom thought I'd gone completely bonkers when I started wandering the driveway looking for interesting gravel.  She said, "Why can't you just string some pretty beads together...make something someone would actually want to wear."  I had a vision.  It was incomplete, but I explored it and it turned into DoodlepunkArt, and now I work for myself doing something that I LOVE with a fervent passion.  I have thrown my heart over the fence and the rest did follow.  


 



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Friday, November 25, 2011

Embrace Your Pain

I don’t believe that hiding our struggles or how we really feel should be treated as the price of being accepted, especially by the people who love us. At the same time, I don’t believe that dwelling indefinitely in pain is healthy either. But we can’t move beyond something we refuse to acknowledge.

So many of us try to get to the other side of pain by going around it, skipping over it, or burying it. The problem is that the wall doesn’t end. It stretches in every direction. The only way forward is through.

Abstract illustration representing the wall of pain and the process of moving through it

That means first facing the wall. Not judging it. Not fixing it. Just recognizing that it’s there. Then accepting it. Then looking closely at how it’s built, brick by brick, until a way through begins to reveal itself.

Sometimes what we need most isn’t advice, solutions, or being told to “get over it,” but someone who can stand with us while we face the wall long enough to understand it. That’s how real movement happens. That’s how healing begins.

If you liked this, you might like my post about using RAIN to cope with unpleasant feelings:
Transform Negative Emotions With The RAIN Technique

Or if you are feeling a bit like you've been run over by a train (emotionally), you might like this:
Taking Back My Personal Power


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Sunday, September 18, 2011

Sometimes I am the Moss

I am feeling a roller coaster of feelings, right now: Relief, irritation, frustration, love, joy, regret, blah…. Last week my cardiologist drew 9 vials of blood to see if we can get to the bottom of my blood clots prior to repairing my shunt. There have been some things consistently out of whack, so he wanted sort that out before he does my procedure on November 1st. He called me with the test results yesterday morning. Two things concerned him. One is the anticardiolipin antibody IGM, which has been in the moderate range all three times. The other is Factor V Lieden. Both things cause blood clots. The IGM also attacks the blood vessels, cell walls and heart valves, which could be causing my hemolytic anemia, hemolysis and the three funky heart valves… So he’s now sending me to a hematologist to get me on the right medications before my procedure. The major concern is that r-l shunt is allowing blue blood, clots and bacteria to skip the filtration of the lungs and go to the brain and organs…and both of these blood abnormalities cause clots, so combined with the hole, it’s an unlucky combination. He told me before that he believed that my intractable migraines are actually TIA’s (transient ischemic attacks – mini strokes) and now this could also explain strokes, neurological problems, white patch on my brain MRI,...  He has to get this under control before he can operate.

I am relieved that somebody is finally doing something to help me, but I’m pissed that it has taken 39 years for that to happen. I don’t want to be pissed, because it is not good for my mental or physical health, it blocks my qi, and it doesn’t change anything anyway, so I guess I’m compensating with the blahs that break up moments of watery eyes and grumpiness. I really really felt irritable and withdrawn today, and I am fighting against frustration that doctors can be so ambivalent. How many people slip though the gaping cracks in this supposedly superior medical community?

I don’t understand why doctors bother to run blood tests if when they come back abnormal they do nothing about it. I have never had a normal CBC, and the IGM has been there every darned time they checked. You’d think the hoards of blood clots, repeated thromboplebitis, massive vascular damage,.... would raise a red flag or two. This only lightly scratches the surface of my misadventure, but I’ve said enough to paint a vague-ish picture of my medical fiasco so you can understand me better, and understand what motivates me in my current creative shift and what motivates what I will have said by the end of this.

Going through it all has been hell and has really taken a toll on my body, psyche and relationships, especially the last few years. I have missed out on the basic normal stuff that everybody takes for granted and have been in the hospital literally hundreds of times in the last few years, including at least two birthdays. I have withdrawn from people and if you’ve had the pleasure of doing something with me in the last 5 years, you should count yourself as a minority. I owe an apology to my friends. I was not rejecting you when I did not take you up on your wonderful invites. It really means so much to me that you thought of me. I know now that it would have been easier to bear this weight with the help of my friends and the fun distractions we could have enjoyed. I have not wanted to be a burden on anyone and was afraid that I would get sick and spoil everyone’s fun. I thought that I needed to be a happy, cheery, rock of a person who everybody could lean on, but I was very uncomfortable leaning on anyone else.

Everybody has many struggles in their lives, but most people hide them. I think people are afraid to come across as vulnerable. We want to portray ourselves as having the lives everyone else wants, because we incorrectly regard “perfection” as strength. This does nothing but lower our quality of life. If we can’t share our pain with other people, then not only do we miss out on the nourishing support from our loved ones, but our relationships remain superficial. We never actually experience true intimacy, and I’m not referring only to romantic intimacy, but to the many deep connections that are possible in life.

People don’t like you because you are smart, talented, rich, attractive, perfect…in fact, I think many people resent folks who seem to have it all. Anyone who likes you for those reasons is only using you. They see you as someone who can do something for them or somehow elevate their status. People really like you for how you treat them and how they feel when they are around you. Unfortunately, some folks are uncomfortable hearing the gritty, intimate, darker details about other’s lives. But I am not, and I refuse to portray myself as a shiny, polished person with no problems. I have problems. I might sparkle sometimes, but that is pure perspiration. If someone can’t handle the dirty truths about my perfectly imperfect life, then they can find their kicks elsewhere. I am not afraid to be ridiculed…and I have been, even publicly by people that I loved. It hurt immensely, but I survived and can look back and know that my problems were not the problem.

I promise to everyone right now that I will do my very best to be myself, the good, the bad and the ugly; and I will do my best to forgive those who can’t accept that. I will also strive to provide my half of true deep, honest, encouraging and supportive friendship to those who are willing to grow and learn with me and love me for who I am. Our struggles are part of living and I want to live fully. Let’s embrace the wholeness now, of what it is to be alive, and do our best to help make life better for everyone, because that gives us purpose and joy. Sometimes we are the rock and sometimes we are the soft, fuzzy stuff growing on the rock.



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